Baby Owen Masterson, hailing from Missouri, USA, entered the world with a condition known as acalvaria, an incredibly rare anomaly that results in the absence of facial bones and the skull.
His parents, Tom and Jessica, were delivered the heartbreaking news that their son faced almost insurmountable odds. Even before his birth, doctors foresaw either a perilous existence within the womb or severe vulnerability during delivery, suggesting that the pregnancy should be terminated.
Owen’s condition came to light during a 24-week ultrasound, where physicians couldn’t ascertain if his brain was adequately protected by his skull. Seeking the expertise of an ultrasound specialist, Tom and Jessica received disheartening news about their baby’s “highly abnormal brain development,” although the specific condition remained undiagnosed. By the 27th week of pregnancy, they learned the devastating truth: Owen had acalvaria, a condition deemed incompatible with survival.
Yet, Tom and Jessica resolutely chose to keep their baby, defying the grim predictions of the medical community. Against all odds, their baby boy was born, enveloped in the love and joy of their family. Jessica expressed her unwavering belief in her son’s safety within her womb, acknowledging her inability to act after his birth.
A mere day and a half after his arrival, Owen was permitted to go home, leaving the medical fraternity astounded by his remarkable resilience. Despite facing ear infections and a stomach virus, Owen managed to thrive in relatively stable health throughout his first year. However, he encountered challenges, struggling with mobility and relying on aids to move, which hindered his crawling and independent movement.
Now at the age of four, Owen continues to defy the odds despite his lack of a skull and accompanying birth defects. His health remains relatively stable, and he manages to confront daily challenges with remarkable determination.
Medical professionals cannot predict how long Owen will live, but his family clings to hope and remains optimistic. Over the years, Tom and Jessica have periodically shared pictures of their resilient son on their social networking platforms. To them, Owen is nothing short of a courageous “warrior,” and they place their unwavering trust in his indomitable spirit.
